What words would we use to describe Margot? Gentle and fragile, yet incredibly spirited, courageous, and wholly dependent. For eight years she filled our lives and for eight years she fought a very brave battle. Margot Florence Foundation has been set up in her honour and loving memory to help children who fight similar battles and those who care for them.

Margot was born in 2007 and, at twelve weeks, was diagnosed with developmental delay and epilepsy.